We are NOT lazy. The lack of nutrition makes us tired and unable to do much, it makes us dizzy, and nausea gets worse if we move. What you could do with no issue takes us twice as long and uses every bit of energy we have.
We are NOT weak. We are anything but weak, although our bodys are sometimes weak we are very strong. When people have the flu they lay in bed and wish it would end. We wake up every day knowing we will still be sick, when able to we go about our daily lives. When most people want to give up after two days of the flu we keep going day after day, never giving up.
It is NOT in our heads. This one gets me very upset. I personally have been told this many times, however i know it is not true. Doctors unable to help us feel at a loss and don't want to admit they can not help so they say it is in our heads, loved ones and friends even say it. A horrible incurable disease like this is hard on us but harder when we are told it is in our heads.
Gastroparesis is NOT a eating disorder. In fact most people with gastroparesis love food, i would eat all day every day if i could, I know many others also struggle with the fact we love food our bodies just hate it. We are not anorexic we are not bulimic, we are just physically unable to eat.
Gastroparesis is NOT from us not taking care of ourselves. I have been told before that I deserve to have GP because you only get it by not taking care of yourself. That is extremely false. GP is caused by stomach viruses, damage to vagus nerve due to surgery or injury, many causes are also unknown.
Gastroparesis is caused by stress. That is also incorrect. Gastroparesis is caused by food not moving threw our body however stress can make gp worse. When you are already sick any depression, anxiety, stress can make it worse.
My body doesn't hate food. It just processes it extremely (and I mean EXTREMELY) slowly. I eat all the time. I just don't absorb enough calories and nutrients, unfortunately. I've had GP my whole life, which is maybe why I have a seemingly easier time of it than some. Surgeons severed my vagus nerve when I was a baby during a nissen fundoplication, leaving me with GP. It's all I've ever known.
ReplyDeleteI am very happy you are able to eat!! That is great :( so sorry this is all you have ever known, GP is so hard!
ReplyDeleteI was hoping that you could share this with your bloggers. This project is important.
ReplyDeleteUPDATE: I now have 11 Progressional GP Timelines from people. I need a bigger sample. Please help? I will keep you anonymous if you want, just indicate it in the email. The research I'm doing and the paper I'll write will contain common links between all of us.
Please also give me permission in your email to release my research (again, I will remove names before I release it) to a medical researcher who can build on it. This is EXCITING! It could lead to better treatments, new technology that can help us, and also open other doors. This is the first time this has been done, so you will be a part of GP history. It's bragging rights.
The deadline is June 21st. That will give you plenty of time to write your timeline and submit it. Please include your birthday and/or year born. We need age for data categories.
The link to the instructions of what I'm looking for is here: http://emilysstomach.blogspot.com/2013/05/progressional-timeline-of-gastroparesis.html
*Emily*